Does anyone know how much money is spent on the research of hunter syndrome? im doing a project and need help? - hunter syndrome
How much is the possibility of a cure needed? The work on the research for my college class and can not find anywhere.
Hunter Syndrome Does Anyone Know How Much Money Is Spent On The Research Of Hunter Syndrome? Im Doing A Project And Need Help?
1 comments:
There may be some organizations that are compiling some of this information available, but I seriously doubt there is a clearinghouse of information.
Here are some links that go with your inquiry. The first thing you will see that the annual cost is for a dose of Elaprase for Hunter syndrome Hunter syndrome, or condition of the orphan, $ 300,000 per year. When the most expensive part of the reason why the demand is low, but the other costs of the investigation.
http://www.boston.com/business/healthcar ...
There is never an estimate of what it costs to find a cure because it is difficult to determine exactly what the title is now and discover what other overlap, etc.
The link below is for clinical studies by Hu JintaoNTER syndrome. There are e-mail addresses for each study site. You can write at any time to find the total of the grants awarded to them for each study.
http://clinicaltrials.gov/ct2/results?co ...
You can get some good information about NORD, National Organization for Rare Disorders. It may be a few dollars for a report or two costs, but that reports that can be useful.
http://www.rarediseases.org/search/rdbde ...
You must understand that the study areas for decades, remains that even at Hunter's syndrome, and that the costs may be necessary to include.
Another place, contact: The pharmaceutical companies that produce treatments - including an assessment onbut here is a article that you some ideas on where to go looking elsewhere is likely to be:
http://www.redorbit.com/news/health/7970 ...
This is a project that will be investigated. Be sure to define terms carefully when writing the information. For example, this means that no money had ever been used in research? The money allocated last year? Make sure the settings are so realistic.
This is a project much bigger than you realize may - order starting with requests for information by e-mail, because it may take several weeks for responses. Good luck.
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